Research and Publication

Research & Publication

KIPCER is dedicated to generating evidence via pioneering high quality research

1. Translation, Cross-Cultural adaption, and Psychometric testing of International Care of the Dying Evaluation(i-CODE) in an Indian Setting
2. The role of Spirituality on Death Distress and Death Acceptance in advance cancer patients receiving Palliative Care in an Indian hospice setting
3. Lived Experiences of primary caregivers caring for patients with advanced cancer in an Indian hospice setting

Current Projects

1. Breathe India:
This project is funded by Medical Research Council, United Kingdom, and in collaboration with HULL University and Cambridge University. The project aims to identify and refine evidence and theory of breathlessness self-management and develop a community-based intervention using the Realist approach.

Our past projects

1. Development of a socio-culturally sensitive intervention to integrate palliative care services into Intensive Care in India UK Research and Innovation GCRF Grant funded this project. This project was successfully completed in collaboration with Lancaster University in 2021-2022. The project aimed to co-design a socio-culturally sensitive intervention to integrate palliative care in intensive care units through the theory of change workshops.

Publications

Rao SR, Salins N, Remawi BN, Rao S, Shanbaug V, Arjun NR, Bhat N, Shetty R, Karanth S, Gupta V, Jahan N, Setlur R, Simha

S, Walshe C, Preston N. Stakeholder engagement as a strategy to enhance palliative care involvement in intensive care units: A theory of change approach. J Crit Care. 2023 Jun;75:154244. doi: 10.1016/j.jcrc.2022.154244. Epub 2023 Jan 20. PubMed PMID: 36681613.

Willis KD, Rao SR, Normen M, de Groot J, Calman L, Bahcivan O, Centeno I, Fehon DC. Same storm, different boat: The global

impact of COVID-19 on palliativ care. Psychooncology. 2023 Jan;32(1):148-154. doi: 10.1002/pon.5995. Epub 2022 Aug 11. PubMed PMID: 35793431; PubMed Central PMCID: PMC9350379

Rao SR, Salins N, Goh CR, Bhatnagar S. "Building palliative care capacity in cancer treatment centres: a participatory action

research". BMC Palliat Care. 2022 Jun 4;21(1):101. doi: 10.1186/s12904-022-00989-2. PubMed PMID: 35659229; PubMed Central PMCID: PMC9166521.

Mailankody S, Sherigar P, Pai A, Shenoy R, Udupa K, Lewis S, Rao SR. PENS approach for breaking bad news in the oncology

outpatient setting: a real-world report. Support Care Cancer. 2022 Dec 14;31(1):13. doi:
10.1007/s00520-022-07458- 9. PubMed PMID: 36513796; PubMed Central PMCID: PMC9747823.

Ghoshal A, Joad AK, Spruijt O, Nair S, Rajagopal MR, Patel F, Damani A, Deodhar J, Goswami D, Joshi G, Butola S, Singh C

Rao SR, Bhatwadekar M, Muckaden MA, Bhatnagar S. Situational analysis of the quality of palliative care services across India: a cross-sectional survey. Ecancermedicalscience. 2022;16:1486. doi: 10.3332/ecancer.2022.1486. eCollection 2022. PubMed PMID: 36819806; PubMed Central PMCID: PMC9934966.

Rao SR, Salins N, Joshi U, Patel J, Remawi BN, Simha S, Preston N, Walshe C. Palliative and end-of-life care in intensive care

units in low- and middle-income countries: A systematically constructed scoping review. J Crit Care. 2022 Oct;71:154115. doi: 10.1016/j.jcrc.2022.154115. Epub 2022 Jul 27. PubMed PMID: 35907272.

Rao SR, Rao KS, Singhai P, Gupta M, Rao S, Shanbhag V, Balakrishnan JM, Acharya RV, Varma M, Saravu K, Munikrishna R

Thomas J, Muthanna CG, Shetty A, Rao SK, Salins N. COVID-19 Palliative and End-of-Life Care Plan: Development and Audit of Outcomes. Indian J Palliat Care. 2022 Jul-Sep;28(3):272-279. doi: 10.25259/IJPC_59_2021. Epub 2021 Oct 28. PubMed PMID: 36072250; PubMed Central PMCID: PMC9443125.

Rao SR, Viswanath V, Simha S. Spiritual Healing in Cancer Care: A Hindu Perspective, India. In: Silbermann M, Berger A

editors. Global Perspectives in Cancer Care: Religion, Spirituality, and Cultural Diversity in Health and Healing [Internet] 1 ed. New York, USA: Oxford University Press; 2022. Chapter 22; p.229. 485p.

Salins, N., & Simha, S. (2022). Sociocultural Context and Its Impact on Communication, India. Global Perspectives in Cancer

Care: Religion, Spirituality, and Cultural Diversity in Health and Healing, 382.

Gursahani, R., Simha, S., & Mani, R. K. (2020). Legislation for end-of-life care in India: Reflections on 5 years of the end of-life

care in India taskforce journey. Indian journal of palliative care, 26(3), 269.

Mani, R. K., Simha, S., Gursahani, R., Mehta, D., Garg, P., & Mathur, R. O. L. I. (2020). DNAR Guidelines from ICMR Meeting a felt

need. Indian Journal of Medical Ethics, 5(4).

Salins, N., Mani, R. K., Gursahani, R., Simha, S., & Bhatnagar, S. (2020). Symptom management and supportive care of serious

COVID-19 patients and their families in India. Indian journal of critical care medicine: peer-reviewed, official publication of Indian Society of Critical Care Medicine, 24(6), 435.

Damani, A., Ghoshal, A., Rao, K., Singhai, P., Rayala, S., Rao, S., ... & Bhatnagar, S. (2020). Palliative care in coronavirus disease

2019 pandemic: position statement of the indian association of palliative care. Indian Journal of Palliative Care, 26(Suppl 1), S3.

Salins, N., Gursahani, R., Mathur, R., Iyer, S., Macaden, S., Simha, N., ... & Rajagopal, M. R. (2018). Definition of terms used in

limitation of treatment and providing palliative care at the end of life: The Indian council of medical research commission report. Indian journal of critical care medicine: peer-reviewed, official publication of Indian Society of Critical Care Medicine, 22(4), 249

Gursahani, R., Mani, R. K., & Simha, S. N. (2018). End of life and palliative care in neurology: Does autonomy matter Annals of

Indian Academy of Neurology, 21(4), 239.

Mani, R. K., Simha, S. N., & Gursahani, R. (2018). The advance directives and foregoing of life support: where do we stand

now?. Indian Journal of Critical Care Medicine: Peer-reviewed, Official Publication of Indian Society of Critical Care Medicine, 22(3), 135.

Gursahani, R., Simha, S. N., & Mani, R. K. (2018). After the Supreme Court judgment on autonomy What the oncologist needs

to know. Indian Journal of Cancer, 55(3), 207-209.

Simha, S., Noble, S., Chaturvedi, S. K., & Gupta, D. (2013). Spiritual concerns in Hindu cancer patients undergoing palliative

care: a qualitative study. Indian Journal of Palliative Care, 19(2).

Research

Ongoing PhD thesis topics